Keep Toddlers Skin Blisters Due to Illness 'Butterfly Wings'

News Health Articles - Keep Toddlers Skin Blisters Due to Illness 'Butterfly Wings'. Never-ending pain is felt Tripp Roth, toddlers as young as 2 years. He lived longer than doctors predicted because of a fatal disease that has claimed vision, speech and made her skin continued to blister. Tripp suffered from epidermolysis bullosa disease that makes her skin as fragile as butterfly wings.

Seeing the smile of a cute toddler will certainly make you exasperated and want pinched. But it can not be done on the Tripp Roth (2 years). The face and hands is always a small toddler and suffered abrasions to blister when exposed to the touch since she was not even a year.



Have fragile skin like butterfly wings make Tripp had to spend her life with a bandage wrapped. Like the butterfly wings are broken when touched, the skin may blister Tripp just because a small touch. Even the friction of the clothes themselves can cause skin blisters and sores.

Tripp was born with epidermolysis bullosa, a genetic disorder that affects 1 in 50,000 people. This rare genetic disorder makes the skin lose a very important element of the protein and serves to bind. This condition makes the skin easily hurt when touched, just like when you touch a butterfly's wing.

This disease is an inherited skin disorder, which can make the skin blister and hurt just because of minor injuries, heat or even rubbing or scratching.

Not only affects the skin, the disease also affects the body parts everywhere, where the network is working together with the more assertive, like eyelids, upper esophagus, the inner mouth and genital-anal area.

Infections and hospital visits has never experienced Tripp stopped because there is no cure for this disease. There is no effective treatment, other than bandages and antibiotics to avoid trauma and infection.

Tripp had to breathe with the help of tracheal tubes and require sedation in order to bathe her nanny, who became painful and time-consuming process of three hours for Tripp.

Tripp's mother, Courtney Roth, had surrendered with his career as a nurse, she stopped working since Tripp was born. But Roth is not going to stop fighting even though doctors said Tripp will not live more than a year.

"Tripp will surely surprise the doctor. He is amazing. I always say like from the beginning. I was never sad there and try not to cry if there is nearby. We make this place into the happiest place. Soul and kepribadiaannya will make me happy," clearly Courtney Roth (26 years), a widow from Ponchatoula, Louisiana, as reported by ABC News, Tuesday (20/12/2011).

Roth said Tripp is very beautiful when it was born, with a few minor abrasions on his head, a little at the back and the nails do not grow to perfection. The doctor diagnosed it immediately, but Roth was initially did not know anything about these rare diseases.

Tripp had difficulty breastfeeding because of the wound in his mouth so that eventually requires a special tube to eat. He was small, weighing only 27 kg with a full body bandage.

"It's very difficult. Obviously he could not speak. He can communicate well, but we have a difficult time and from what I could see in his behavior, he must have looked in pain all the time," explains Roth.

Roth unyielding deemed to have become an inspiration to many people. He was even chosen as one of ABC Personal Heroes of 2011. He was chosen because of the many letters and emails coming in from supporters across the country. Many of them have never met Roth, but have read his blog, "EB'ing a Mommy" and Facebook page, "Prayer's for Tripp".